We’re pleased to announce the launch of our new website to all our group members today. We hope that you will enjoy it and find it useful. This will be another way for Lupus Brighton and Hove to offer support to people with Lupus and their families. It will enable us to share new information about the condition easily, together with any tips that group members  may have  about living with lupus.

We also hope that it will help any newly diagnosed patients in the South East, who my be feeling isolated, to find the group so that they can come and meet other people  with lupus.

If you would like to give us any feedback about the website or have any suggestions that you would like to make, then you can contact us through the form on this website or by emailing us at admin@lupusbrightonandhove.co.uk

The first coffee and chat of 2013 in our new venue got off to a great start with eleven people attending. We were also pleased to welcome three new members to our group.

Among the many things we talked about, were ideas for events and days out that we could do together. One suggestion was to hold a garden party in the summer at which we could also sell cakes to raise money.

Two of our new members have also very kindly offered to make some new, larger Lupus Brighton and Hove posters  to advertise our group and to raise awareness about lupus SLE. We then plan to get some printed and display them around town eg. Jubilee libary, Worthing Hospital, Sussex County Royal Hospital and GP’s surgeries.  In this way, we hope we’ll reach more people in the area, who have lupus and who may need support.

Finally, we asked ,”What people would most like to get, from coming to the group?” answers were: “friendship” and “being able to meet people who understand what its like to live with lupus, without having to explain.”

The launch of our website is getting closer, after Mel, Harsha and I had one last meeting with Rick Gough and Adam Wilkinson at American Express in Burgess Hill today.

Once we received the grant, some of the money was to be used for a website to help patients find our support group in Brighton.  Harsha approached American Express to see if they could help us with creating the website. Harsha, Mel and I then got together and to create a specification for it.  Rick, Adam and Tim from Amex took the task on.  We met regularly to discuss our needs and here we are today with this wonderful and professional website. A big thank you to Rick Gough, Adam Wilkinson and Tim Platt on behalf of the Lupus Brighton and Hove Support Group for working so hard to make our new website possible!

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